Day 5

Days one through four were perfect!  Day five was awful!  

Part of the reason was that instead of Monday through Friday, which is the way most people do Lemtrada, I did Tuesday through Saturday. During the week, I had my routine, being there on a Saturday completely threw me off. 

Instead of having Lloyd with me, my mom was there. Lloyd had to come up for a visit though, he had to run up my blood pressure medication when that spiked for a reason I couldn't figure out at the time. Then I did; I started my period.  Between the Lemtrada, the steroids, and being cooped up, my body was going crazy!  

Treatment week is now behind me, never to be repeated. Yes, I know I'm going to have another three days of treatment a year from now, but three is a lot less than five. I also know that I'm going to have other challenges with this treatment. It's a marathon, not a sprint. 

Day 4

Started a new IV for day 4 and 5 today. Very tired and can never sleep. 

Treatment went fine, less steroids today, but the "'Roid Rage" has hit me like a ton of bricks tonight!  

I feel like I want to rip something; and it seems to mostly be my husband's head off his body!  I admit that it's not his fault, and we both knew this was coming, but it still stinks. 

I know my emotions will regulate eventually, but until then, I'm stuck being an evil green monster. And I still have one more day!

Day 3

Day 3 was largely uneventful. I spiked a bit of a temperature (99.3). It went back down after ibuprofen.  The day took a little longer because my regular nurse was out and will be for the rest of the week. She's going to a graduation out of town. I also had the IV taken out at the end of the day to start day 4 with a new vein. This also has me worried because I'm not so great with needles and I don't know if the new nurse will be as good as the last nurse. 

The bad thing happened when we got home. Angela had a restless nights sleep the night before, so I was expecting her to nap. She was asleep on the ottoman when we walked in. As she woke up, her fever spiked. This is more of a problem because she has had febrile siezures in the past. 

We gave her ibuprofen, and Lloyd took her to urgent care where they found no infection, but they gave her amoxicillin anyway. We were up all night watching the temperature. The insomnia from the steroids helped.  No siezures and she slept ok. 

But this is what I'm the most nervous about. How do I deal with having no immunity and a three year old?  I asked my nurse about it, and she said as long as I use lots of Lysol and Chlorox wipes and wash my hands, I should be fine. She also suggested I wear a mask if she gets really sick. 

Day Two

Day two was completely uneventfull, so this will be short. I'll run through the daily protocol as it is supposed to be, since on day two it happened exactly as it was supposed to. 

Arrive, get line flushed with saline and then a shot of IV Benadryl. 

1 Hour steroids

Flush with saline 

4 hours Lemtrada itself. 

2 hours Saline drip and observation

Still no side effects, apart from a little insomnia. No headache, no rash.